My previous post was written weeks ago and I just got around to posting. Since then a lot of bad things have been happening and my Neurologist cannot confirm whether or not they are to do with my epilepsy. As you can imagine, this is very frustrating and I have to keep apologising to my Specialist Nurse for all but yelling at her down the phone.
I have been signed off work since the beginning of September until early November and I have an MRI booked for the 26th October. My symptoms are currently the 'whooshy' sensation I mentioned, visual disturbances/nystagmus, feeling very drunk and/or hungover, headaches/migraines, dysphasia (difficulty with speech), muscle twitches, unexplained emotions and exhaustion. I rarely leave the house, which is doing nothing for my mood. I am in the process of changing meds, so you could suggest some of these might be side-effects of the Lacosamide... if the symptoms hadn't started two weeks before I started taking them!
I am slowly titrating my meds and I haven't noticed any change in symptoms. My Specialist's advice was to "wait and see" - I was not at all satisfied with this advice and I insisted on an MRI and an EEG (she is getting back to me re the EEG). I need to know they are not going to come back and say "good news! the MRI is clear!" and leave it at that.
I have cancelled holidays and deferred a university course because of this. I need to find out what it is and how to fix it.
MPN, I think this is an informative post and it is very useful and knowledgeable. therefore, I would like to thank you for the efforts you have made in writing this article.
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